Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)- Page 2
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#25
Posted: 7/23/10 at 12:56pm
Also, just a note. If you're a new potential donor, GREAT! If you've been typed before with the National Marrow Donor Program (now Be The Match), you do NOT have to get retyped. I checked with the agency these drives have been through, and they said that their information goes into Be The Match's registry, and that's what doctors pull results from.
Again, if you're a new potential donor, GREAT! Just letting those who've been typed with another agency before that they don't need to do it again. :)
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#26
Posted: 7/23/10 at 2:08pmMy sister, brother and sister-in-law are in Baltimore now doing a Bone Marrow Registry Drive at the Firehouse Expo, as part of the Be The Hero For a Hero foundation (which my sister and sister-in-law set up). They had 106 "potential heros" on Thursday, and will be there until Saturday. With all these drives going on, surely a match will be found for both Shannon and my brother! Fingers crossed and prayers going out...
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#27
Posted: 7/23/10 at 2:16pm
That's great Corbin got swabbed, especially after the TV cameras were off.
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#28
Posted: 7/23/10 at 4:11pm
kec, sorry to hear about your brother needing a match. Keep up the positive attitude.
For those who missed it, there is another drive in Manhattan (not specifically Shannon related) coming up on the 31st. There are others in Brooklyn, Bronx, and in other cities around the country if you use your zip code to search the link I posted earlier in the thread.
Recruitment Center: The Icla da Silva Foundation, Inc.
Telephone Number: 888-638-2870
Drive Name: Harlem Children's Zone
Drive Location: Harlem Children's
Address: 35 E 125th Street; 6th Fl
New York , NY 10035
Drive Date: Jul 31 2010
Drive Time: 12:00PM - 5:00PM
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#29
Posted: 7/23/10 at 4:38pm
Massive X 4 Shannon from London, Uk.
Hope all goes well.
Chorus Member Joined: 12/24/06
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#30
Posted: 7/23/10 at 4:54pmThanks for all your support! We registered over 750 people today at the Minskoff! Thank you to all who came out, volunteered, or otherwise have supported Shannon!!
Joined: 12/31/69
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#31
Posted: 7/23/10 at 5:26pm
I would love to be a donor, but I tried a few years ago and, (just as with the red cross), they would not accept me because I am gay and had not been celibate for 10 years. I just now went to their web-site, and they do have a rather vague note that says "those who are at high risk for hiv may not be able to become donors". It advised to call for further details, so I did, but merely got transferred to a persons voice mail, stating she is not in for a few days.
Does anyone know the current policy regarding this?
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#32
Posted: 7/23/10 at 5:44pm
sferezy, that's FANTASTIC news!!!!
Update to add that at the Firehouse Expo in Baltimore another 130 potential heroes joined the registry, making a two-day total of 236, with one day left at the expo.
For those who might be interested, here is the link to the Be the Hero site:
Be The Hero for A Hero
Updated On: 7/24/10 at 05:44 PM
Broadway Legend Joined: 5/16/03
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#33
Posted: 7/24/10 at 4:57am
Bone Marrow( well, all) transplantation is a bit guarded re screening for pre existing conditons ie HIV, HepB/C TB. your family hx also counts alot in consideration as an appropriate donor. ( hx of other cancers, MS,) Age can also be an eliminating factor ( rarely due to youth as sibs are freq used a donors but after age 65 due to the drop in hgb in an aging pop these individuals are usually removed from the list.
An re the 4/6 match- here is a little basic larnin- there are 23 chromosomal pairs- if you have a female donating to a female - you already have one match! but of the rest- well they can only try to match up 6 so really the more of the 6 you "get right" the less of a chance that the remainder non match will adversley effect the success of the transplant or result in graft versus host disease.
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#34
Posted: 7/25/10 at 8:02amA total of 326 potential heroes were added to the registry this weekend at the Firehouse Expo. Combine that with the number of people added to the registry at the two drives on Broadway, that's over 1,000 new people!!!
Broadway Star Joined: 3/26/07
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#36
Posted: 8/8/10 at 3:45pmGreat minds think alike Salene -- I was just coming to post that article. Bravo to 50 Cent!
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#37
Posted: 8/13/10 at 11:16pm
Looks like Shannon is getting help for her illness. Great news!
Shannon gets Treatment
Stand-by Joined: 2/18/08
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#38
Posted: 8/14/10 at 9:21amThis made my whole day, I'm so happy for her!!
Broadway Legend Joined: 4/22/04
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#39
Posted: 8/14/10 at 1:36pmI am not familiar at all with medical treatments and their risks, so why didn't they just do this before? Is the umbilical cord treatment more risky? Are the survival rates not as high? I tried doing a little bit of research. Glad to know there is hope for Shannon. God bless her!
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#40
Posted: 8/14/10 at 7:20pmI'm not completely familiar with the cord blood treatment, but I do believe that like the marrow, they need to find a perfect match. My brother's doctor has been looking into this option for him as well.
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#41
Posted: 8/14/10 at 7:28pmThis is excellent news that she's getting this treatment. It's amazing how she has such a positive outlook through all of this; smiling and singing.
Broadway Star Joined: 10/15/08
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#42
Posted: 8/14/10 at 9:37pm
i believe it has to do with the fact that, generally speaking, cord blood transplants are relatively new when compared to bone marrow transplants. hence, there is more experience with the latter than the former.
here's one way of thinking about it. it's easy to study the effects of different therapies for a disease that is common. i can easily find 18,000 americans at any given time who have high cholesterol. i can put 6000 on one pill, 6000 on another pill, and 6000 on a sugar pill to see a) if the pills are better than placebo (i.e., they actually do what they're supposed to do), and b) see if one pill is better than the other.
this is more difficult to do with conditions that are, generally speaking, less prevalent. so, if there are 50 young children with acute myeloid leukemia, there are difficult questions of testing bone marrow vs cord blood to see which is better. because bone marrow has been in use longer, i suspect it is felt to be "the gold standard," and no one really knows if cord blood is better, as good, or worse, because it is difficult to conduct that kind of study (i.e., doctors may be reluctant to use cord blood if they feel bone marrow is better, and a parent may understandably be reluctant to enroll their child in such a study if it means their child "may" get "inferior" therapy).
i am purposely being vague as i am removed from my pediatrics.
Broadway Legend Joined: 5/16/03
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#43
Posted: 8/15/10 at 12:20am
it's not the cord BLOOD so much as the stem cells that are the transplanted.
I'm linking to some more info from the Mayo Clinic
stem cell/bone marrow transplants
Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)#44
Posted: 8/18/10 at 5:59pm
More potential heroes added to the registry courtesy of 50 Cent:
50 Cent Registers 4000 People...
Videos
