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Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

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#2

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

My heart goes out to this brave young girl and her family, and all those in a similar position.

I hope this story garners a lot of publicity and inspires a surge in people registering as bone marrow donors, particularly among those ethnic groups where there is a shortfall. I have been on the register for years (via The Anthony Nolan Trust here in the UK), but have never been 'matched'. Hopefully one day I'll be able to make a difference...

Wishing 'Young Nala' all the courage and strength of a lion in her fight.

Seen some shows in my time....

Updated On: 6/18/10 at 04:46 AM

#3

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

Went through this w my nephew (Non Hodgkins lymphoma). It is so much better now w stem cell transplants rather than just bone marrow aspirate. But the cost of the testing is still expensive so getting on the list is problematic. If there are any groups doing testing, locally, try to sign up. And w the stem cell its not as painful for the donor. Ethnic minorities are particullary needed as some cultures ( ie Asian) have very restrictive about the idea of "blood". Education is helping but stil a big bias to over come. G*d Bless and Good Luck Shannon.
#4

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

Having a friend/colleague suffer through lukemia caused me to be tested. I've been a registered bone marrow donor for just about a year.

To those of you interested in registering, the "test" is nothing more than a few mouth swabs -- painless. It takes longer to fill out the paperwork than it does to do the "medical" part of the test.


If we're not having fun, then why are we doing it? These are DISCUSSION boards, not mutual admiration boards. Discussion only occurs when we are willing to hear what others are thinking, regardless of whether it is alignment to our own thoughts.
#5

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

I've been registered for about 10 years now but haven't been contacted. There was a drive around Raleigh then that was started because of some child who needed a transplant. A local agency funded the testing so we didn't have to pay anything. I don't know if it's changed and they don't charge you since apparently it's changed so that they don't have to do a blood draw anymore, but the fact that the person being tested had to pay to go on the registry in many cases does (did?) make it prohibitive to a lot of people.
#6

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

I'm on the register as well, because my brother is suffering from multiple myeloma brought on by his work at Ground Zero after 9/11 (he's a now-retired firefighter). My sister posted this story on the Be The Hero For a Hero Facebook page.

It does cost, but funding has usually been provided at the Registry drives I've been to (and the one I did at my church last year). I know that Be The Match Foundation has no mor funds for this fiscal year but perhaps BC/EFA might be able to help?
#9

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

You can also register via email/mail too- I email requested a registration kit via dkmsamericas.org, they mailed me the kit, I mailed back the cheek swabs, they emailed me to let me know I was typed and added to the registry. They covered all the materials and postage, it was truly that easy.
#14

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

Very true bethnor. Chances of a perfect match are much greater from someone within the same ethnic group.

Wickepoppinsfan, just sign up in two years, when you are of age. You may not be able to help Shannon, but you could be a match for someone else.

Updated On: 7/19/10 at 04:03 PM

#17

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

sferezy, I wonder if a flyer explaining the drive could be inserted in the Playbills at all the other shows on Broadway the night before the drive? Lots of ticketholders are probably staying in the immediate area and I would think a good number of them would take a moment out of their morning to stop by.
#22

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

They mentioned the drive today and they said that so far they found a 4 out of 6 match for her but they are hoping for a 6 out of 6 as, of course, that is what they really need. Sounds like it is a bit tougher for her because of her mixed race.

God bless her. I hope they find it.
Just give the world Love. - S. Wonder
#24

Bone marrow donor needed for 11 yr old Shannon Tavarez (Lion King, Young Nala)

I wish the best for Shannon. It's great to see how much support she has from the community. If I was going through what she is, I would be miserable, so God bless her for not letting her illness get in the way of her strength and happiness. It isn't fair what she has to go through, so I really hope she finds a match.
"We like to snark around here. Sometimes we actually talk about theater...but we try not to let that get in our way." - dramamama611

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