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#151

The ALS Bucket Challenge




I finally got it together to read your excellent article, Mark--descriptions of the progress of the disease take me right back to where I was during my father's journey: witnessing, helping when I could, feeling helpless when I couldn't help.

I was very moved by your writing and honored that you chose to share it with us. For what it's worth, I'm sure my father would have read it and said something along the lines of "He's one heckuva guy."

As for me, I'll just repeat this line of yours that struck me: "In the future, I may be in a state where I can't speak or write anymore, so I want to say it now: Thank you!"

All I'll add is: Keep writing.


#154

The ALS Bucket Challenge

Come on only $20.8 left to go!
Those Blocked: SueStorm. N2N Nate. Good riddence to stupid! Rad-Z, shill begone!
#157

The ALS Bucket Challenge

This is AMAZING! Let's see if it tops 100 by the end of the week. It is slowing down a bit but I am still hopeful!
Those Blocked: SueStorm. N2N Nate. Good riddence to stupid! Rad-Z, shill begone!
#162

The ALS Bucket Challenge

I LOVE that one! I was falling out of my chair laughing.
Those Blocked: SueStorm. N2N Nate. Good riddence to stupid! Rad-Z, shill begone!
#163

The ALS Bucket Challenge

That one got two million hits in two days… pretty great.


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#164

The ALS Bucket Challenge

Some upcoming films featuring characters with ALS: Hilary Swank plays a pianist diagnosed with ALS in “You’re Not You”.
http://insidemovies.ew.com/2014/08/28/hilary-swank-youre-not-you-trailer/

And Eddie Redmayne plays Stephen Hawking in “The Theory of Everything,” which I hope to see at the upcoming Toronto Film Festival.
http://www.tiff.net/festivals/thefestival/programmes/specialpresentations/theory-of-everything
Coach Bob knew it all along: you've got to get obsessed and stay obsessed. You have to keep passing the open windows. (John Irving, The Hotel New Hampshire)
#167

The ALS Bucket Challenge

That is F*CKING awesome!
Those Blocked: SueStorm. N2N Nate. Good riddence to stupid! Rad-Z, shill begone!
#168

The ALS Bucket Challenge

Now, use that money to make some miracles happen (eventually).
#169

The ALS Bucket Challenge

My sister and I took the ice bucket challenge on my terrace in Prague in honour of my late aunty Jenny. We have donated to Motor Neuron Australia, as in Australia it is referred to as MND :)
#170

The ALS Bucket Challenge

I'm so happy to see what started out as a negative thread turn into something beautiful and inspiring. I'm glad it wasn't deleted.

Someone asked to see Stephen Hawkings' challenge?


His kids stand in for him.

Updated On: 8/30/14 at 02:03 PM

#171

The ALS Bucket Challenge

I just read an article by a woman who's father has ALS. He needed a ramp built at his house and the ALS people said it was too expensive. Then after this challenge started, they called back and said with the influx of money they had gotten, they were going to pay for his ramp after all.
KFTC!!!!!
#172

The ALS Bucket Challenge

That's beautiful, and exactly why this has been so important!
#174

The ALS Bucket Challenge

Stock, I love that one, specific story.

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