Ice Buckets. — Page 5

That would be GREAT. But expensive. Unless it was expired sushi.

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They're up to $34 million raised through the ice-buckets.

That's $34 million they didn't have last month.

That means there are people in my father's condition who may not know the twisted, tortured agonizing death he suffered from ALS, knowing that his limbs were becoming "useless appendages," as he said at his most bitter and angry, and his body "dead weight."

He said Alzheimer's would be better because at least you've got dementia to hide what's going on. With ALS, it's like medieval torture, where you see and hear and understand that your muscles and joints will never work again. BUT YOU'RE ALIVE TO WITNESS IT.

Hopefully, others won't go through that, but, realistically, research and treatment don't happen overnight.

But $34 million, people. $34 million.

I don't give a flying F*CK how many people posted videos without contributing.

At $34 million, it's a negligible percentage.

The point is $34 million.

So shut up about the people not contributing. Okay? Shut up.

Or my father's ghost will visit you in your darkest and most bitter hour, and give you dreams of your arms and legs withering into useless appendages and your body becoming dead weight.

Thirty-four million dollars people. It's a good thing, NOT a thing to be snarky about.

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Updated On: 8/21/14 at 01:16 AM

And again, I say Amen.

PJ, I was waiting for you to share your story. Thank you.

Again, I can't imagine anyone who has been touched by this hideous disease having any problem with this fundraising effort.

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Thanks PJ for putting the attention of this effort/challenge where it truly belongs: not only raising awareness but raising the funds needed to subsidize the efforts in finding a cure. I'm sorry that your dad had to suffer with it. It sounds excruciating. I would never, ever wish this (or any other disease) on anyone.

Warning: Do not open Robbie's video while at work unless your whole office is watching with you. Grab the tissues.

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Funny Gay Male Bob Smith is living with ALS. He was the first openly gay comic to appear on.a US TV talk show. The first time I saw Funny Gay Males I could barely breathe from laughing so hard. Smith's is another face that may be familiar to those of us who were around back in the day.

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Speaking as someone who has ALS, I think the ice bucket challenge is a great thing and I thank all of those people who have participated – by taking the challenge, making a video, raising awareness, helping someone with ALS, donating, or any or all of the above. I myself have not done the challenge, but I did donate.

I was diagnosed with ALS in July, 2013. I have been on long-term disability leave from work since October, 2013. I am able to speak and eat, however I am no longer able to walk, dress or bathe myself.

Because ALS is rare and people with ALS are often unable to get out in the community, often people do not know anyone with the disease and know little of its effects. But thanks to people like Pete Frates, we all know a lot more: http://espn.go.com/boston/story/_/id/11366772/in-als-fight-pete-frates-message-loud-clear-ice-bucket-challenge

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Robbie, that video should be shared far and wide. Heartbreaking and the point.

Canmark, I echo PalJoey's wishes for you. Strength, love and all the support you need.
I add you to my prayers. And I thank you for your voice in this important and serious matter.

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Friends of Bob Smith are holding an online auction of folk art for ALS research in Bob's honor.

The Auction Starts at 8:00 AM Friday August 22 and runs through Sunday August 24th till 9:00 PM THE BUYER IS RESPONSIBLE FOR ALL SHIPPING COSTS. ALL MONIES MINUS SHIPPING FEES will be donated to The ALS fund in Honor of Bob Smith. There may be more items added through the weekend.

https://www.facebook.com/groups/PrimitivesforALS/

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$41 million as of today.

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I like that very much.

Because the ladder on their truck hit a power line.